Part of the guilt of having a baby in
the NICU was that your baby went through so many things without you.
Many of these things were unpleasant.
We were assured Atticus wouldn't remember the procedures and painful
encounters. This was a relief, but it also bothered me at times. How
would his body process all of these experiences? How would we explain
to him later about this time, if we so rarely saw all that he went
though? Someone needed to be a witness, to validate that it had
happened.
Atticus needed a new PICC line so that
he could receive sustained medication treatment for the Group B Strep
infection. He also needed a spinal tap so they could check him for
meningitis (Max covers the lead-up to all of this wonderfully). I
asked if I could stay to watch these procedures. Or I lingered and
made it obvious I was going to stay. Either way, like something in a
dream, it was happening and I was there.
For the spinal tap they almost had to
bend him in half so that they could get to his spine. His body was
still so tiny, though also long and lanky. Watching them handle him
was a totally unnerving experience. It was like he was both human and
dough. They touched him deftly, carefully, but they also moved him
into whatever shape their procedure required.
I had taken a needle in my spine for
the epidural a few weeks earlier. I'd had to fold myself into as
tight of a bend as I possibly could, while having contractions. As I
watched them bend him it was the only time I felt like I might have
experienced something my son was going through. But even then, there
was no real comparison. In my memory I was a big person on a table
choosing to bend myself, while he was here, a tiny person who was
being bent.
The bending was quick. They squished
him up and inserted the needle, but there was no liquid to draw.
Apparently Atticus was too dehydrated to give any fluid. Even the
staff seemed deflated after this, but there was still the PICC line
to go.
Our doctor introduced me to the
technician who would insert the PICC line. She was a slender,
confident woman about my age, whom our doctor recommended with great
praise. I greeted her, probably without shaking hands, to relieve the
pressure to go wash our hands again. Then I tried to find a place
where I could commence my mighty witnessing while also standing out
of the way.
This was often a problem on the NICU,
trying to find the balance between being present and not getting
underfoot. The unit was primarily open, with 'rooms' sectioned off by
curtains. At this time Atticus was still on C-hall in a cosey corner
that had a wall on one side and a long curtain that could be pulled
around our space for extra privacy.
The physical presence of this curtain
was both comforting and maddening. I was often lingering among the
fabric of it, feeling it brush against my back as I waited off stage
in the wings while my son shone in the excruciating light of painful
experience. Standing there watching other people care for him, I felt
useless. There was sufficient time to deeply question my
as-yet-unknown ability to parent, should I be fortunate enough to
take him home after all of this.
I stood behind Atticus's incubator as
the PICC line nurse and her assistant flipped latches on the
incubator and, low and behold, Atticus was lying in the open air with
a heat-lamp nearby to keep him warm. They dropped the sides down so
they could reach him easier.
He was moving (he was always moving).
He could move so many parts of himself at once with his tiny, sinewy
muscles. His feet and hands floated up in the air, fingers splayed, his skin still moist from the incubator. They moved him so they could
get to his legs. I'd been told that they would try to insert the line
through his leg or foot, since the previous location on his wrist had
been compromised by the infection. They began to wipe down his leg
with alcohol swabs.
At some point they produced purple
cloths which looked a lot like restaurant napkins, and placed the
cloths over him, covering up the parts of his body they weren't
working with. They even laid one over his head. When they were done
he was a mound of purple cloth with a leg poking out of the
bottom. He was still moving and wiggling. It was the friendliest
little leg.
A PICC line is a long, thin plastic
tube that can snake through a vein. The nurse rolled up her sleeves
to begin inserting it. She broke the skin on his foot near his ankle
and began to push the little plastic tube bit by bit. It was awful to
watch. She had a strong hold on his leg and he couldn't really do
much, but he was trying. I could see the purple mound moving
more energetically, could hear his soft little cry.
It was so slow,
the pushing of the line, and at one point she stopped and gave up
because it wouldn't go any further. Then she pulled it back out and
tried at different place on his leg, somewhere below the knee. This
one also refused to go through.
I could tell my anxiety was making the
staff nervous. I now couldn't bear to continue looking at the
procedure. When she moved to try the second leg I had to step away
and stand by the windows at the front of the hallway. I could tell I
wasn't helping, and though the problem seemed to be his dehydrated
veins, I might've made it all worse by making them nervous. All I
could do was try not to hate myself for the luxury of being able to
move away from this scene, and pray that they would succeed, quickly.
Each time we visited Atticus we would
say the 23rd psalm to him, and we prayed sometimes
together, out loud. This gave the outward impression of great
devotion, a sanctity not really reflected in our church-less lives,
but hell. It was a coping mechanism that surfaced at that time, and
I'm glad it did. Praying gave us a way to unite with each other and
the multitudes of people who were also praying for our son. It gave
us something useful to do while we waited in the wings. It also felt
like the right channel to tune into, for surely if God were present
anywhere, it was with all these struggling little bodies. And with
all of us parents bent low. I stood by the window and
prayed.
Atticus got the PICC line; I think they
tried again a while after I left. He got his antibiotics, his body
slowly hydrated, and he began to heal. I went home that night shaken
and hopeless, having born witness, but hoping he would only forget. Forget
all of it, including my useless words to him as he was contorting
under the cloth.
Such a powerful description. The emotions of it stay with me... and also the curious question you pose that must be relevant to so many adults and babies, though in very different ways: what is it like or what does it mean when *their* story and experience is so engrained in you and yet not remembered by them. With A, it's his whole birth story... and the NICU days. Hell, even the years leading up to his birth. Things he was the center of but the memories you all own, not him really. It's a strange and powerful theme that gets at the heart of narrative, I think... like how many different ones there are at the same time, and who owns them or who carries them. Thanks for writing about this! It has awakened my heart and brain this mid-morning.
ReplyDeleteSuch a powerful description. The emotions of it stay with me... and also the curious question you pose that must be relevant to so many adults and babies, though in very different ways: what is it like or what does it mean when *their* story and experience is so engrained in you and yet not remembered by them. With A, it's his whole birth story... and the NICU days. Hell, even the years leading up to his birth. Things he was the center of but the memories you all own, not him really. It's a strange and powerful theme that gets at the heart of narrative, I think... like how many different ones there are at the same time, and who owns them or who carries them. Thanks for writing about this! It has awakened my heart and brain this mid-morning.
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